Today I was woken up at about 11:45 because my mom called my cell phone, so I woke up to it blaring “Thrift Shop” by Macklemore. I have to admit, it is not the worst way to wake up, it could have been an ugly alarm sound but at least it was good music to pump me up in the morning. DeAngela was already in the house and was on the couch and answered the phone for me, then handed it to me, only for my mom to apologize for waking me up and that if I were going out anywhere, some of my medications need to be refilled (a suggestion that I should get my meds refilled).
Again, I was stricken by my heartburn-like symptoms, so I was not able to start on the buckets, unlike Dee. I got a phone call from Kaiser, at a number that I was unfamiliar with, as I have gotten a lot of calls from Kaiser and I normally recognize where they are calling from by the number. Turns out it was from the hospice department. She was saying that we were having an appointment at my house, that day, at 1:30. Um, what? I had no clue about any of this, so I was in shock to say the least, but I just went with it. I called my dad to let him know, and he said he would be over by 1:30 for the appointment. My mom also came home in time for the hospice worker to come over for a consultation. Naturally, being on hospice is never a good sign. I already know what is going to happen to me, but I try to not think about it at all and just bury it in the back of my mind. Having the lady there explaining about what hospice offers made my imminent death right front and center. As much as I want to stay positive and hope that everything will be okay in the end, I do not want to get that false hope in something that I have been guaranteed will happen. The hospice lady said that the best case scenario would be that I get kicked out in three months because I will no longer be terminally ill. I was given at most three months to live, however I plan on living longer than that. That is how I will stay hopeful- by living longer than I was told I would. Not getting cured, because that is an incredibly long shot, but just living long enough to fully accept what will happen to me. As much as I say that I have accepted the fact that I am going to die at a young age, I really haven’t thought about it too much. And I often say that I am more worried about how my friends and family are going to cope without me and deal with my loss; however I am scared to die. Straight up, I do not want to die. I feel like I have so much more to offer the world than I have in the past 20 years. If I had another 20, I believe that I could really contribute a lot to society. I have always wanted to start a family, as I know for a fact that I would be a good mom (if you see the way I treat my cat Panda then you would understand as well) and would raise a great child. I will not be able to accomplish that, but I will be able to be a good wife for the time that I have left. A great one, in fact. I have seen what it takes to have a successful relationship, what not to do and what to do, first-hand so I have learned so much from what I have seen. Whether it is from my friends’ relationships, my mother’s, and my friends of family’s relationships, I always take notice of the little things that make a great and lasting relationship. As much as this marriage won’t be lasting a very long time, it is taking into account the “through sickness and in health”, “for better or for worst”, “until death do us part.” I guess that is all that I can truly ask for in a marriage. So I will have to thank Egor for marrying me- I cannot thank him enough for making me his bride. It takes a lot of courage to jump into a marriage, especially one where you have not dated each other. At least we are best friends and always will be, this will make us even better best friends.
Oh, I guess I got a little off track. The hospice appointment is not exactly what I thought it was going to be like. Mostly just saying what they offered, such as 24/7 nurses available, volunteers available, etc. And some paper signing, mostly confirming that we understand what was offered to us. I started crying, because talking about me dying is an incredibly sensitive subject, so my parents were hugging me and supporting me while I was wailing. I absolutely hate crying in front of anyone and try not to at any cost, but I just had to let it go. Even the hospice lady cried for a second- somehow I think that they do not have as many cases of young people going into hospice, so this really touched her. After learning how to use my oxygen machine, the lady left.
My dad and DeAngela stayed to watch some tv about extreme couponers, whom we all agree on are hoarders and greedy little pigs. They need to not have this huge stockpile of food and supplies that will expire by the time they use them. They need to donate a lot of their items, otherwise it is such a waste, no matter if they spent any money on the items or not. Then we ended up watching River Monsters, which is much more interesting. Man, there are some crazy scary fish out there!!!
Eventually everyone left and I sat on the couch watching another program on animal planet while waiting for Chopped to come on. My dad came back to watch that show with me, as we share the love of that show. Tuesday nights are Chopped nights with my dad.
Jeanne came over to go over the vows and other things, as she is going to be the officiant for my wedding. While she is nervous, she is so excited to be representing something so important in my wedding.
Well, I am pretty darn tired right now, so I will stop writing right now! Goodnight, and I cannot wait for my wedding in a few days! Woohoo!
Lauren, your bravery in all you are dealing with is powerful and your words are your legacy. Continue to journal as long as you are able. and then perhaps with the help of family record your thoughts on video. I will continue to pray for you and your journey. I am truly in awe of your spirit. God Bless!