I was originally going to post this last night, and I had written what I believe to have been an amazing post- but the internet here in the hospital is kind of shoddy and did not save any drafts whatsoever and when I went to submit my post, it could not be posted because there was still no internet. I was very upset at the time and am still not too happy about having to remember what I had written yesterday and rewrite it again. So, here it goes!
With my last post being about surprises, it took me about 5 hours to write that one blog, and here is why: I started it at 11 at night after being put on all of my night pills and infusions which make me incredibly tired- but I felt compelled to write an incredibly long post because I had a lot to tell. Anyways, I kept on falling asleep and waking back up (all the lights were still on) whenever my night nurse would come in to check my vital signs or do whatever else it is they have to do at night. So I would wake up, write quite a few more lines down, and then fall back asleep. This continued until about 4 in the morning until I decided to finally buckle down and finish it once and for all. Then I finally got to go to sleep and hoped that I would get enough rest for my busy day to come.
When I woke up I was incredibly tired. I had to be up and ready by 11am in order to be picked up by the ambulance to travel 30 minutes to my radiation team. I woke up at about 9, which seems to be enough time to get ready and go, but I got very distracted when I had to check my Facebook, Snapchat, Instagram, and FML like I do every single morning as part of my routine. I also had to eat some breakfast, and I eat incredibly slow now in the hospital just to make sure that I do not get sick off of inhaling something in the wrong pipe. Then came time to take my shower. Now, this is no ordinary shower that most people have probably have had the privilege to experience it. I basically have to wash my hair in the sink and then use these warm, wet wipes to “wash” down my body. I have to say that nothing can beat a shower at home.
So when 11am came, I was greeted by my EMTs for the day and I was incredibly relieved that they were not the same EMTs that I had for the last two days. They had been really impersonal and preferred to talk to each other rather than the women they had to transport (DeAngela has ridden with me to my radiation appointments every day without fail). The undesirable EMTs also decided that it would be fun to run over a center divide right before going to the radiation center to save time and hopefully get there on time, although I do not understand the logistics of it, and we were even early for the appointment so the whole ruse was for nothing. Also, they know that they are dealing with a terminally ill patient who has quite a bit of pain, enough so I have a pain pump. Not to mention that having radiation on my organs makes me more nauseous, so what they did was entirely insensitive. They even requested me for a second day and I had no clue that I would be stuck with them again, so needless to say I wasn’t pleased. But I was so relieved when I got my new EMTs (who had apparently taken me on last Friday or Monday). They were much nicer and we could talk a lot with them.
Radiation went smoothly as usual, and I absolutely adore my radiologists, although I think I already said that… I had to take some xrays too of where they were radiating and my radiologist Ben was able to roughly sketch where I was getting my radiation- seems to be mostly a lot of my left lung and heart.
When I came back to the hospital after radiation I was just plain pooped. I could not even take a nap because I had a lot of my best friends coming over to hang out and watch movies. The people who came to visit were: Susette (my best friend as well as one of my bridesmaids), Eden (my ex-chemo buddy and also a bridesmaid), DeAngela (my best friend as well as my maid of honor), Nicole (an ex-teammate from the Gators and whom I competed against in college swim), Morgan and Stephanie McKibben (members of the babysitting coop whom I have known for many years). Susette and DeAngela (as well as my dad) stayed and watched movies with me, which included the scary movie Mama. I am a scary movie junkie, so I have watched most of the classic scary movies that everyone has seen and I have seen more of the very crappy/ almost funny because they are so bad. So naturally I was excited when it came to watching Mama. At one point, DeAngela got so scared and startled that she jumped up and screamed really loudly and scared my nurse, Robyn, who was in my room at the time. Robyn also screamed and jumped, so I was surprised that she did not drop any of the items that she had been carrying. My dad, Susette, and I all laughed so hard that I think we were crying. It was just the funniest thing to me.
Then Susette had to leave and a little while later DeAngela’s wrestling teammate from Kentucky (who just happens to live nearby here in Sac) came by and watched the rest of Mama with us and hung out a while after it had finished. Grant is funny and is not awkward around me or my dad- and my dad can be pretty intimidating with my dad’s different, but amazing sense of humor.
Speaking of my dad, he has been awesome through this whole process. He loves to hang out with me whether it is just walking around the park, swimming, or watching tv- which is normally what we do. We share the love of food and swimming and can be found constantly watching Food Network and the Discovery Channel. He always knows how to make me smile and how to encourage me through my hard times, but then he also knows how to bring me back down to earth and tells me things realistically. That is one thing I am very thankful about, he does not have to sugarcoat things so I know that whatever he is telling me is the truth. I love my dad.
Oh, and why was I feeling so bridal? I had on a white tank top with silver jewels on it that spelled out “Bride” given to me by my cousin. It is a pretty awesome shirt, and I felt very bridal wearing it.
So yesterday was a very good day, and I will probably post later tonight with more news.